Tuesday, August 16, 2011
Are you Pinning??
I'm loving trying new things. All the crafting and the knitting (ok- just casting on still, but it's a start!) is making me feel like there is more to life than trying to get pregnant. And I think along the way I forgot about that. I'm determined to be happy this year. Relentless Optimism strikes again.
And since I'm a whore...
Monday, August 15, 2011
Best.News.Ever.
I went to the Endo today and he doth proclaim it that I am CANCER FREE!! I have a 99.6% chance that the cancer will never come back. Thems pretty good odds. YAHOO!! It's really the best news I've had in a long, long while. And any good news is welcome in this camp.
So here's the plan- I go back in 6 months for a follow up with blood work and a physical exam of my neck- just to make sure there are no lumps or bumps. 6 months after that, I'll have a specific set of blood work done- thyrogen induced thyroglobulin blood test done. Thyroglobulin is the "cancer marker" in the thyroid bloodwork. It should be very, very, very low. And right now- it is. So in a year- they will give me thyrogen to try to spike it. If it stays like it is now- we're in the clear! I expect no surprises.
And now I can return to my non-cancer having life. I'll take my synthroid and forget that the last three months ever happened.
Sunday, August 14, 2011
No News
No new blog entries lately- I guess I was on blogging hiatus. And really- there was nothing going on. Ok, this may be a lie, but nothing huge. I have lots to blog about. I'm working on my To Do List and learning to enjoy my time off the baby making trail. So I'll be back to blogging soon!
Wednesday, August 3, 2011
It's Official
Sunday, July 31, 2011
To Do List: Revised
1. Take golf lessons
2. Learn to knit
3. Read a book a week
4, Drop at least one dress size
5. Spend at least 2 full days at a spa
6. Visit Texas
7. Go on vacation with my husband
8. See my niece and nephew at least once a month
9. Decorate my house- mostly look for things to put on the walls
10. Have 2 yard sales
11. Plant a vegetable garden
12. Have a girls weekend with my online friends
13. Go camping for the first time ever
14. Spend more time in DC- finally learn my way around
15. Go on a date once a month with my husband
Wednesday, July 27, 2011
A Note from my Endo
Good news. Looks like what they saw in the lungs was an artifact. When they switched you to a different camera, the uptake in the lung disappeared. They are confident there is no metastatic disease. And certainly with your stimulated thyroglobulin being <0.5, that would support there being no spread of cancer as well.
JW
Translation: NO MORE CANCER!!!!!!!!
Tuesday, July 26, 2011
Bad News Today
The technician came out again, sat down next to me, and told me in a hushed voice that there was a "spot" on the chest scan and that I would need to come back again tomorrow for another scan. They want to be able to compare the scans from last week to the scans from today to the scans from tomorrow and determine what the spot is.
I don't really know what that means. I just know that I'm scared. I'm scared that tomorrow I will find out that the spot is more cancer. J is still out of town so I will be going to the scan alone. I hope I won't have to get more bad news while I'm there alone.
Sunday, July 24, 2011
How I will spend the next year.
1. Take golf lessons
2. Learn to knit
3. Read a book a week
4, Drop at least one dress size
5. Spend at least 2 full days at a spa
6. Visit Texas
7. Go on vacation with my husband
8. See my niece and nephew at least once a month
9. Decorate my house- mostly look for things to put on the walls
10. Have 2 yard sales
11. Plant a vegetable garden
12. Have a girls weekend with my online friends
What else can I add to this list?? Any ideas??
Idaho
So I'm on my own. It's a double edged sword. It's nice cause without J here, I'm not confined to the guest room- I have the run of the house. But at the same time, there's not even anyone here to talk to anymore. True isolation.
Tomorrow will be better. At least I'll be working. Almost over.
Saturday, July 23, 2011
So.Freakin.Bored.
Friday, July 22, 2011
363 days
Wednesday it was confirmed by the Endo and the Nuclear Med peeps that we have to wait a full year until we can safely have a baby. And honestly, after seeing all the precautions and how seriously this is taken by the hospital staff, I'm not sure I would feel ok with anything less.
So I'm back on birth control. How did I get all the way back here??
Thursday, July 21, 2011
I'm *GLOWING*
I survived radiation iodine. And it's all finished. I wish I could have written stuff down while I was in there, but I couldn't take anything out with me cause of the contamination so that was a no go.
But let me describe a bit. I had my I-123 full body scan Wednesday morning. They gave me a small dose of radiation on Tuesday and then I returned to see where the "uptake" occurred. This would essentially determine if the cancer had spread anywhere else and help them determine the treatment dose for Wednesday afternoon. I got the results immediately after the scan and everything looked clear- especially the lungs and neck which was great news! No more cancer!
So I waited around for them to get the dose of I-131 (treatment dose) in house. I was admitted around 1:30pm and taken to my room. It was a pretty standard hospital room except EVERYTHING was covered in plastic or some disposable coverings. The phone, the door handles, the remote control, the ENTIRE floor- everything covered. Gloves taped to the walls everywhere in case I would need to touch anything that was not covered. The radiation safety guy came in to quiz me and make sure I understood all the rules and safety precautions. Lots of rules. I thought they were a bit of overkill before, but seeing all the paperwork and how seriously they take everything at the hospital, I guess I realized it wasn't anything to mess around with. So I signed my life away and pinkie swore that I won't make out with anyone or serve anyone food for 7 days (14 for kids). They came up with the pill in a lead box. I took it and they left me alone.
I fasted for two hours and then they brought me dinner. I ate and the showering started. In order for the radiation to leave your body- it comes out of your pours, your bladder, any bodily fluids. So all night long- starting at about 6pm- I showered every two hours. You drink, you eat lemon flavored candy (to produce extra saliva), and you shower. My hair is like straw. Sleeping with wet hair is not fun. Plus the air conditioning was making it FREEZING in my room. So I'm pretty tired today.
So when I took the pill, they measured my radiation levels and I was at a 25. I have no idea what that means, they just told me that before I could leave- I had to be at a 14. The more you drink (and pee, really...) the faster you get ride of the bad stuff. This morning when they checked me, I was at a 4.5. I was cleared to go home!
So now I'm at home, tucked away in my upstairs nook. I've already had some cheese and have enjoyed every.single.bite. Nothing left to do now, but wait it out. Lockdown ends in 7 days and I finally get my life back.
PS- if you read all that, you get a delish snack full of iodine.
Tuesday, July 19, 2011
Sometimes men SUCK.
Meanwhile I've been cooking and cleaning and doing laundry. Others have offered to make dinner, but JC? Not even once. No help with laundry. No help with grocery shopping. Tonight I asked him if he had called the RE or the Uro to make appointments (ya know...try to follow up on the zero sperm issue) and did he do that? Um, nope. Seriously. PISSED.
I am his wife. Not his mother. I feel like I have to tell him he's not allowed to play with his toys until all the chores are done. And now I'm going to be in the hospital tomorrow and we're barely speaking.
STOP SUCKING HUSBAND.
Thyrogen Shot #2
And then I went grocery shopping. And I bought an OBSCENE amount of cheese. Cream cheese, mac and cheese, cheese-its. If it's cheesy- I bought it.
I have dreams of an Iodine filled Thursday.
Monday, July 18, 2011
Thyrogen Shot #1
Ok so the shot itself, while an intramuscular injection, was totally painless. About an hour after I got the shot, I had a HORRID headache. And just didn't feel right. Not really sick to my stomach or dizzy, but just off. I decided after getting the shot, that I would come back to work. Big mistake. I couldn't concentrate and ended up crying in my cube. I hate crying at work.
I'll be going home after tomorrow's shot.
Thursday, July 14, 2011
Maybe new hope?
Hmmm...six months I can get down with! Something I'll have to bring up to the endo!
Monday, July 11, 2011
Supplies
I had to get:
- Queen set of sheets
- Two Bath Towels
- Toiletries to include a toothbrush, shampoo, conditioner, and body wash
- 2 sets of clothes- one for sleeping and one for day time
- Socks and underwear
I also bought drinks to bring to the hospital and lemon flavored candy.
Friday, July 8, 2011
Who needs sperm anyway.
The RE called today to tell us there were exactly zero living sperm in the sample. Not even one.
Like always- just when I think I'm on the upswing- something sends me plummeting into the depths of despair. I haven't cried in two weeks and now I'm trying desperately to stop.
I fucking hate infertility. I hate this roller coaster. I'm ready to give up and we haven't even started.
Free Dinner? OK!
She made us:
Pork Carnitas
Fresh Salsa
Candied Almonds
Chocolate Pudding Cake
Fresh Applesauce
This is the best gift anyone could ever give me these days! I didn't have to cook a thing and got to take all the leftovers home. I have the best friends.
Thursday, July 7, 2011
New Insurance
JC got a new job. So along with a raise (YEAH!) that means we'll get new insurance. I told him that this job offer is contingent on the insurance plan. When you have Cancer, you can't mess around with health insurance. It's got to be the real deal.
It's a small company and they told him they have the "Cadillac" of health plans. So I'm hoping that this means all my thyroid docs will be within the network and none of that will have to change. I refuse to leave my endo!
And maybe, just maybe...we'll get infertility coverage out of this. Does IVF fit in that Cadillac??
Tuesday, July 5, 2011
I'm going to be famous-ish!
So now I'm going to be famous-ish! She asked me about how infertility had impacted my friendship with S and how she was able to be a good friend to me through the experience. She asked me about what advice I would give others who have friends going through infertility. They even called and interviewed both my RE and a counselor at their office on how to deal with a friend going through infertility struggles.
Even if it helps one person- it's worth telling the story.
Low Iodine: Take 2
I made basmati rice and really, really good turkey chili. Roasted lots of veggies. Made my green egg salad and some painfully dry banana coconut bread (maybe it will be better with some jelly on it?).
But the best find of all was the oatmeal cookies. Holy Crap they are good! It's like a little slice of sanity- without the iodine.
So two weeks of this. I've done worse for two weeks.
Friday, July 1, 2011
RAI Scheulde- Changed AGAIN.
So now I'm on a totally different protocol- 3 days of Thyrogen shots and then I'll be admitted. In the long run- it's good. Less time off work for me and a holiday weekend with no dietary restrictions.
But FOR REAL. Quit messing with the schedule (and my life).
kthxbai.
Thursday, June 30, 2011
New Car and a Call Out
We bought a new car today- a 2011 Honda Insight. This one's not mine, but it looks like this:
It's a hybrid and gets about 40 miles to the gallon. Compared to the 17 that I get now- it will almost pay for itself in the gas savings alone. It's cute and I like it.
So Car Sales Guy sold us our Pilot also (we're turning into Honda whores). So we're waiting- always a lot of waiting when you buy a car- and he says to me "Is that scar on your neck new?" Um, yes. I have cancer. Thanks for bringing it up. Appreciate that. We keep talking- idle chit chat and he wants to know why we have no kids. Um, yes. Infertile. Again- thanks for bringing it up.
Seriously- I can't escape this shit. My one small victory of the night was learning that my credit score is 4 points higher than my husband's. I could tell that it bothered him and I kind of loved it.
PS- Low Iodine Egg Salad, while green and odd looking- tastes ok.
Tuesday, June 28, 2011
Low Iodine: Day 1
Here's what I ate:
Breakfast
Plain Cream of Wheat
Banana
Lunch
Watermelon
Dried Pineapple
Grilled Zucchini and Peppers with Mrs. Dash
Dinner
Orzo Pasta Salad- Made with my homemade vinaigrette dressing with grape tomatoes and grilled asparagus
I did get a low iodine cookbook from the hospital (you can take a peek at it HERE) and tomorrow I plan on making some of the bread-ish items. Bread and cheese are what I miss the most. I did some cooking tonight so tomorrow I won't have to do so much. I made Asian cole slaw, egg salad (made with avocado instead of mayo- the jury is still out on this one), and I still have some orzo salad left.
The SUPER sucky part is that I think it will be 100% impossible for me to eat in a restaurant with these restrictions. I just can't control the way the food is prepared. JC and I are supposed to go out of town this weekend and I'm already stressing out about what food I'll have to bring with me.
Stupid fucking cancer.
Monday, June 27, 2011
Low Iodine Diet: FAIL!
Low Iodine means that until I get out of the hospital- July 21st- I can't have: dairy products (goodbye cheese- I miss you already!), processed breads/crackers, anything with iodized salt, seafood, or soy. So pretty much all I can eat is fresh fruits and veggies, and chicken or beef. Plain. No marinades or dressings (most have salt in them). I know it's temporary, but it sucks. It's just this huge reminder that I have cancer and I'm about to go through treatment for it. I'd rather just eat cheese and forget about the cancer part.
Sunday, June 26, 2011
A Weekend Away
It was good timing- I needed a little pick me up and some good time with my husband.
Saturday, June 18, 2011
Perspective
A year is a long time when you're trying to make a baby. You live your life by your menstrual cycle and the thought of waiting 12 whole cycles is painful. You'd think I'd be over it by now. You'd think that I would be glad to be living cancer free (well cancer free-ish?) with my healthy husband, enjoying our time together before starting our family.
But I can't seem to focus on anything good at the moment. I know there are plenty of people dealing with things that make my life look like a picnic. I know that we'll be ok. It's just hard to see the good in all this.
Monday, June 13, 2011
Thyroid Levels
The best they've ever been. I cried when I got the email from the endo. And not because they were so good, but because that means I have no idea why I don't feel well. And I hate my body.
Sunday, June 12, 2011
Chocolate HEAVEN!
There in Hershey is this place: http://www.chocolatespa.com/
AMAZING. There are chocolate muffins all around. You get fluffy robes to spend the day in. You spend the whole day just being pampered with sugar scrubs and coco butter. I got a massage and a manicure. They have this totally awesome mint shampoo in the showers. I left with super hydrated skin and smelling like a chocolate bar. It's like a little slice of heaven. It was just what I needed.
Saturday, June 11, 2011
Happy Blogging Birthday
Friday, June 10, 2011
One Year Ago...
I remember being so hopeful. I remember thinking our biggest obstacle would be my arthritis. I remember stalking my chart every day- staring at it looking for patterns. I remember analyzing every twinge I felt.
So here I am a whole year later. And nothing is as it was then.
I gave up on charting long ago- just didn't seem to have a point anymore. I know we'll never have a baby "the old fashioned way". I have cancer. My husband and I have both been hospitalized since then.
Next year has to be better, right?
Thursday, June 9, 2011
200th Post
And then the lady from Nuclear Medicine called me.
I had my entire schedule for Radiation Iodine treatment planned out. I coordinated my entire life around it. Scheduling trips away, doctor appointments, my work schedule- all based around this hot mess of a schedule. My sister rescheduled my niece's baptism so I could go.
There is STILL a shortage of Thyrogen (you can read about it HERE) and so all my treatment appointments were pushed back three weeks. THREE FREAKIN WEEKS.
So now instead of being admitted on July 7th, I'll be in the hospital on July 20th. And of course- just pushes all things IVF even further out. FML.
Followers
I know I've been boring lately- but I super mega thank everyone who reads my ramblings. I love knowing that you're out there and I love it when you make such awesome comments.
Thank you for following me!
Wednesday, June 8, 2011
I'm bringing blogging back.
I'm pretty boring these days. I'm DOG tired. Like the worst fatigue ever. So that means I have no love for blogging at home. I get home and I lay on the couch. That's about all I can muster. I emailed my endo today begging him to find my lab results. It's starting to mess with my work life and I just can't be this tired all time. So I'm hopeful that we'll get it straight soon.
In other news- JC is down over 40 lbs. since surgery. It's crazy. He doesn't look the same, he doesn't feel the same when you hug him. It's strange in the best way possible. He's behaving himself from an eating perspective so that is all getting better.
I'm going to be a better blogger. I pinky swear.
Tuesday, May 31, 2011
Right now I am annoyed by:
1. My husband. Maybe someone could tell him that HE decided to have gastric bypass? No one made him do it. So get your shit together and do what you are supposed to be doing. I can't help but feel responsible for his health. I wish I could let go and just let him figure it out on his own- but it's just very hard for me. On top of all that- he keeps making shitty comments about me being a nag. I'm trying hard not to cause him physical harm.
2. My mother.
Yes, your husband (my father) passed away. But that does not make you helpless so stop acting helpless. And if you could do that sooner rather than later, that would be great. kthxbai.
3. My job.
I hate you right now. HATE. I hate my lazy coworkers. I hate my bitchy manager. I need a new one.
Bleh. I need out of this funk.
Friday, May 27, 2011
TSH levels
Wednesday, May 25, 2011
Frozen Sperm
They froze 6 vials and she said when they did the test thaw- only about 3 good sperm showed up. She said we only probably have about 15-20 good sperm in 6 vials.
I am seriously delusional. I thought things were getting better. FML. I hate this shit.
In other news- I have a crap ton of blog posts saved as drafts so hopefully I'll finish them and old stuff will start popping up. I've been a serious blogging slacker lately!
Tuesday, May 17, 2011
Back in Bed
Sunday, May 15, 2011
Dr. Mo's Good News
Dr. Mo says it is totally realistic to think that JC's hormone levels could normalize on their own with weight loss. :::insert happy dance here:::
So now maybe fate will line everything up just right. I'll have radiation iodine treatment. JC will drop like 100lbs. and then we'll have babies the old fashioned way.
Maybe?
Crazycakes
She and my mom (who in all fairness is also a crazycakes, but of a TOTALLY different flavor...) haven't spent a whole lot of time together until JC's recent hospital visit. The time that they did spend together involved Crazycakes airing all the family dirty laundry (well her version of it, I guess) and my mom making the Blank Stare face.
She unloaded on me Monday night at dinner about all of Crazycakes revalations and I tried to explain to her that there are two sides to every story- The Crazycakes version and the truth.
Why do all MIL's have to be crazy? Why can't I have the one rare one that isn't nuts??
A tale of two hospital visits
Have some popcorn. This could be long.
So we wake up to go to the hospital. We're joined by my mother and my Crazycakes MIL. (I swear- I think it's a rule that your MIL has to be a crazycakes.) JC goes into surgery and I'm a wreck. And my ears are bleeding because my mother and Crazycakes are talking each other to DEATH. Surgery was supposed to be about two and half hours. So when we were rolling up on three hours, I was near puking from nervousness. Dr. Mo (awesome surgeon who also did my surgery) called me and told me that he was out of surgery and doing well. He did the bypass and also repaired the hiatal hernia. He also said that he found another hernia in his diaphragm that was repaired as well. PHEW. Holy Crap. I was so nervous. So we get to his room and he's SUPER out of it- Dr. Mo also said he's impossible to get to stay asleep. He kept waking up during surgery so they basically had to drug the shit out of him. His worst surgical fear came true- he had a catheter in when he came out of surgery. He was pretty out of it all day Monday. He even made a joke in his half away and mostly drugged state about taking out the catheter and taking me in the bathroom. In front of our MOMS. How romantic and super awkward all at the same time. I left him there that night (worst feeling ever- leaving the hospital without him) and came back Tuesday to a much more awake husband who had zero recollection of the previous days events or jokes. So we walked the halls and they took the catheter out. And he was feeling great- no pain meds even. Dr. Mo's PA came in and said he was doing great and could go home that day. Yahoo! The nurse said he would get one more dose of Toradol- an anti-inflammatory drug before we left the hospital. So we go home and he was desperate to nap in a comfy bed without an IV pole attached to him. He napped and then the shit hit the fan.
About 5 hours after we left the hospital, he started having some pretty extreme abdominal pain. He was taking the narcotics that the surgeon gave him, but they weren't helping at all. He couldn't sit anywhere that was comfortable. He couldn't get up and down from a seated position. He could barely move. We were up all night long trying to manage his pain. I woke up (Wednesday morning)after a three hour stretch to find him sitting in our living room with tears running down his face. It was time to call the doctor. So we paged Dr. Mo. He called back and told JC to come into the office. We go there and they took his blood pressure- 187/120!! Holy Crap. He sent him for a CT scan to make sure everything looked ok on the inside. Except CT scan meant he had to lie down. Ouch. More tears. Sadface.
We went back to Dr. Mo who decided to readmit him to the hospital to figure out what was going on and try to manage his pain. I went home to get stuff and of course my mind is racing- is he going to need surgery again? Should I call Crazycakes? Is he going to be ok? What happens next? Like 1000 questions. I get back to the hospital and they have already repeated the Upper GI test (used in gastric bypass patients to determine if there is a leak in the new stomach) and that came back normal. He told me that he had finally farted and had some diarrhea (Sorry, TMI). And normally this wouldn't have been a big deal, but when you have laproscopic surgery like he did- they fill your body with air to make your organs float so they can see better and all that gas is super painful. So him farting and moving his bowels is a super awesome thing. They started him back on Toradol in the hospital as well. And finally he had some relief from the pain. They said he'd have to stay to be monitored at least one night, but maybe more. And for realz- I was so glad they were keeping him. After Tuesday night- I couldn't manage it by myself so it was good that they were going to take care of him. I knew he wasn't in pain anymore so that was good. Dr. Mo continued to watch him and he kept taking Toradol. Thursday was good- he was walking around again, having less and less pain, still moving the bowels, drinking- all good things. They said he could go home Friday. PHEW PHEW PHEW. Everything is going to be ok.
Friday morning he developed the super nose of an 8 week pregnant lady. He could smell EVERYTHING and it was making him sick. And nothing tasted good. I thought it was just the hospital smells, but we were finally discharged and came home and sadly- our house stinks, I stink. Everything stinks. I'm hoping it will get better. So since being home- he is doing really great. Eating soup, drinking, taking his vitamins. We're going for short walks and he's feeling better each day. What a crazy ass week it's been. I've missed another week of work and I'm dreading going back tomorrow. I'm dreading leaving him home by himself and I have no desire to see my manager. But the most important thing is that JC is ok.
For real. If you read all that- you are awesomesauce.
Sunday, May 8, 2011
Mother's Day
And then I got a little sad. Fvck Infertilty.
Thursday, May 5, 2011
Plan B Sperm
But just in case- plan B is to freeze the boys. JC has a very romantic appointment at the RE today so we can freeze sperm. Back up sperm. Cause I won't need them.
Side Note: I've directed him to ask for the count. Just curious, that's all.
Wednesday, May 4, 2011
What's good for the goose...
I'm hoping that JC having weight loss surgery will be good for me too. I had gastric bypass almost 4 years ago and in the last 3 years have managed to put on 40lbs. There. I said it. 40lbs. I'm hoping that he'll be in charge of what he needs to eat and I can be in charge of what I need to eat and that eventually we'll meet in the middle somewhere.
I'm also looking foward to starting to try new things for exercise. JC wants to canoe and hike this summer. Once this surgery and RAI is over, we'll have a good year of trying new things together to look foward to. It's nice to have good things ahead for once.
Sunday, May 1, 2011
Tour de Food
Pizza, wings, steak...all of it. Thank god it's over! I am done eating.
I think JC going on this little adventure is good for me too. I'll be able to cook for just myself for quite sometime and hopefully it will help me get my weight back under control.
Friday, April 29, 2011
I'm tired of hospitals.
Is it wrong that I'm already thinking about the potential changes to his testosterone levels? I mean I guess it's possible that he'll drop a ton of weight and his hormone levels will normalize and then we won't need IVF in a year??? Dangerous thoughts for me. Anything is possble, though, right?
Tuesday, April 26, 2011
What would have been....
Emotionally I've been doing ok. And then I figured out that it would have been today and I got a little sad. In my head, I know that waiting a year isn't a deal breaker. But in my heart it feels like there is just no end in sight to all of this.
The hardest part is that I'm afraid I will spend the next year watching everyone else move forward and I'll still be left behind. Still with no baby.
I just don't want to spend the next year sad. It will just be too much.
Sunday, April 24, 2011
I'm Out. Yikes.
I'm nervous about the reaction. And not sure if I'll post anymore. I guess I could always just say I'm supporting a friend? But on the other hand- I feel like such a wuss doing that. I should be able to just own this and admit that we are having trouble. I always hate on people who can't own it. So I should. I should own it and stand up for people who are afraid to.
Yikes. Can I still delete my status update?
Friday, April 22, 2011
Radiation Iodine Schedule
Here's the scoop:
June 13: Start really sucky low iodine diet.
*Side note: You have no idea how much iodine is in food. Basically low iodine diet = only eat sucky foods. Awesomesauce.
June 27: Thyrogen Shot
June 28: Thyrogen Shot
June 29: Take I123 pill to prepare for Uptake Scan and have scan of salivary glands
June 30: Uptake scan to determine I131 dose
July 5: Thyrogen Shot
July 6: Thyrogen Shot
July 7: Admitted to the Hospital for RAI Treatment.
So they give you the dose of radioactive iodine and then you wait 2 hours to maximize absorption. And then you start showering, eating candy, and drinking water. They don't want to have radiation "resting" anywhere that bodily fluid may accumulate- your salivary glands, your bladder, resting on your skin from seeping out your pores. I was told at least 5 showers in a 24 hour period. I have to bring candy with me that will cause me to salivate. And I have to be constantly drinking fluid. Sounds fun, right?
July 8: Released from hospital once my radiation levels are acceptable for the general public.
July 9-13: Will be at home in isolation. I won't be allowed within 3 feet of anyone (including my cat) for more than just enough time to walk past them. JC and I will live on separate floors of the house. Boo Kitty will go on a week long vacation at my Mom's house. I'll need to get a set of sheets and towels that will be essentially disposable. JC won't be allowed in the same bathroom that I'll use. I'll need two sets of clothes- one day time and one night time. Each time I wake up, I'll need to change clothes and wash my clothes, sheets, and towels from the night before. I'll need to shower 2-3 times a day. All my plates, cups, utensils for the week will be disposable. (Sorry environment!)
July 13: Post Therapy Scan
So the good part- no real physical pain- aside from the freakin DRY ASS skin I will have after 85 million showers in a week. And after all that mess is done- I should have about a 2% chance of recurrence. Not bad odds.
I was hoping to get this done in June, but no dice. There is currently a global shortage of Thyrogen so this was the earliest they anticipate having the meds for me. Countdown to IVF: 15 months. Holy Crap that feels like forever.
Wednesday, April 20, 2011
Come out of Hiding!!
But it's *really* nice to know that others read it.
And I look at my blog stats all the time. I discuss them with my friend lissasue. I'll never beat her in number of followers, though. Sadness. And then she and my recent blogging friend Kelly posted about outing all the lurkers. And now I'm curious.
If you read my blog- Tell me about yourself! How did you find my blog? What would you like to know about me? Extra points for funny questions.
Tuesday, April 19, 2011
Want to hear something terrible?
And when I found out she was here, I cried. And not happy cry- woe is me cry. I cried cause I'm afraid I'll never have an Olivia.
Thank God my sister will never see this.
Monday, April 18, 2011
What makes a good day?
1. I got my pathology report back today and ALL the lymph nodes are CANCER FREE!! And that means NO MORE SURGERY!! WAAAHOO!! Amazeballs. Simply Amazeballs. There ended up being three instances of cancer in the thyroid and one of the nodules had some more aggressive cells in it. Because of that, Super Endo recommends that I go through radiation iodine treatment. And really- I'm ok with that. As long as I don't have to have any more surgery- I'm down. So REALLY good news.
2. My kind, kind friend Katie (from THIS post) offered to come with me to the hospital today. Katie is a Hematology/Oncology nurse (for kids, but whatevs)and is familiar with all the medical jargon and hospital business. And she knows that it was TOTALLY possible for me to actually murder my mother before the day ended. So it was very kind of her to offer to be the buffer and translator of all things medical. Soooooooooooo...we go into the nuclear medicine department and there is Dr. Garcia. Dr. McDreamy Garcia. My young, cute, non-wedding ring wearing radiation oncologist. Dr. McDreamy Garcia and Katie spent my appointment being flirty mcflirty. McDreamy Garcia offered all of us his card at the end of the appointment and Katie promptly asked him out for drinks via email. I'm so proud of Katie for this and told her I would have to blog about it.
So dear blog readers- Cross your fingers that the good news keeps flowing for both Katie and I.
And since you were all curious...here is a link to Dr. McDreamy Garcia. CLICK ME.
Friday, April 15, 2011
Back to Work
I have the worst fatigue ever. Not just being tired- like pure exhaustion. The kind like when you get the flu and you feel like you've been hit by a truck- that kind. Like tired to the core. That happens around 2pm every day. Not really sure how that will pan out at work.
The closer I get to going back to work, the worse the anxiety gets. I wish I could just quit.
Thursday, April 14, 2011
Next Steps
::sigh::
Not a great sign that I'm going to Nuc Med this early. Monday will be a long day. JC can't go with me so my mom is coming. I'm already frustrated with that. I wish he could go with me.
Tuesday, April 12, 2011
Scar Anxiety
I got the scarf suggestion from a friend and now I can't wait till this little sucker arrives. Even if it just helps me feel better, then it will be the best scarf ever.
Warning: Poo Talk Inside
Monday, April 11, 2011
Tingles
Sunday, April 10, 2011
Surgery- The real scoop.
Saturday, April 9, 2011
I lived.
Thursday, April 7, 2011
Bye Bye Neck
Tomorrow at this time, I'll be in surgery. We have to leave the house at 4am to get to the hospital. I'm not afraid of the surgery, just afraid of the aftermath.
Cross your fingers for me.